The Journey So Far

I was born on July 28, 2007. I was immediately transferred to Mount Sinai Hospital in Toronto an soon after diagnosed with CHARGE Syndrome. I have many congenital abnormalities including: Hypoplastic cochlea in both ears, hypoplastic cochlear nerves ( I am profoundly deaf in my left ear and moderate to severely deaf in my right ear), absent semi-circular canals in both ears, small brain stem, small and displaced facial nerves, bilateral colobomas that encompass the optic nerve, and heart abnormalities (VSD,PDA).