Physio

From the very start of my first physiotherapy appointment I screamed from start to finish. No matter what I did there, I was completely unhappy and unmotivated. I will do the same thing at home and on my own terms with no argument but not at the my appointments and not when being made to do it!! After almost 2 years of this Mommy and our PT have become very frustrated. About 3 weeks ago we introduced Picture Cards into the mix (thanks to our wonderful Speech therapist) and have added tactile supplements to them as needed. Mommy also started doing this at home.

Well.... we just got back from out appointment today and it was a great SUCCESS!! I used the walker (we are starting with this walker until I feel more secure to use the one that goes behind me...I'm not sure of the proper name) and rode the tricycle without crying. I actually even enjoyed it and looked around at all the murals on the wall. Mommy and my PT ( Who is fabulous by the way!!) are so excited with this progress:

Using the walker

Picture card my Mommy made using Paint.net free program

(Thanks to Naill Brown's www.deafblindresources.org website for the instructions)

And here is a video of me riding the tricycle....Sorry about the lopsided post. I didn't know how to fix it.

Possible Hacker?

Hmmm.... Mommy and I came home to find this guilty looking friend of mine.

She claims she was just researching the newest dog treats and checking out pictures of my Auntie Danielle's new puppy but I think something fishy is going on here... I will have to keep a close eye on her from now on.

** It has been 3 days now on antibiotics any my random crying has stopped. Mommy is very happy that I am feeling better. She thinks it was an ear infection (I get them quite a bit) but can't know for sure.

Birthday, Parker, and Quick Update

Hello everyone. I am very sorry for the lack of updates. The first reason (and most upsetting) is that the hard drive on our laptop broke and we had to wait to get it back. Sadly, Mommy was not very smart and did not back up a lot of pictures that were on there so we lost quite a few pictures and videos. Also all our pictures of baby Evan. Mommy has definitely learned her lesson!!

The second reason for the delay was that Mommy and Daddy went to the CHARGE Conference. It was WONDERFUL!!! They met so many families and cannot wait until 2011 for the next one. Their only regret was that they did not take me, so I am also excited to get to attend the next conference!

The last reason for the delay was that we were busy celebrating my 2nd birthday. Yep..that's right I am now 2 years old!! My Aunts and Uncles came over this weekend to celebrate and it was fun. Check out how cute my cousin Parker is while playing with Sally and blowing bubbles!! I spent most of the day hanging out inside because I'm not feeling quite right and I keep having weird bouts of random crying? However Parker was very nice to hand me a toy or remote control (a favorite of mine) when ever he noticed me empty handed.

Thank goodness for NO-Spill bubbles.

Isn't he super cute?

Mommy and Daddy attempted to make me taste icing. I didn't cry but I wasn't begging for seconds either...

Ahhhh.... fast asleep after a long day!! My Mommy is not sure what is wrong with me lately but something is not quite right. Several times throughout the day (and night) I just start crying for no reason. My regular pediatrician is away for a few weeks so Mommy took me to another Doctor. He could not see anything causing the crying episodes but it is very unlike me to cry ALL day. We have a prescription of antibiotic at the pharmacy on hold so I think Mommy and Daddy will give it a try just in case. Many times other Dr's have said I am fine but when we finally get to go to the pediatrician she says it's an ear infection...so maybe this time it is the same. Wish me luck

PS: I, like many other CHARGErs, have trouble sleeping though the night and LOVE to have little night parties. We are considering getting a weighted blanket. If anyone reading this has used one could you please let us know how it work for you. Thanks :)

Summer Fun

I have found the BEST thing!!! It is shiny, blows cool air on my face when it's hot out, and if you run your fingers over it you hear a really loud noise and it feels funny. Mommy said it's called an air vent. I think it's a fun summer toy.

Lately I have really been playing well outside. Before I would cry for sometime but now I am enjoying the nice weather. The picture above is my reaction to seeing bubbles. It's a new favorite around here.

I even will ride my fire truck on the patio. Although I don't go near the grass. It really scares me.

There is soooo much stuff to see out here. I can't believe I was so scared at first. I am glad it's only July!

Look!!!! I am even smiling and giggling. Mommy LOVES my little chipmunk smile!

All Smiles

Hello everyone. This is a picture that Daddy sent to Mommy when she was in the hospital. She would look at it several times a day and it would always make her laugh. Although I giggle and smile all the time, it is rare to get a picture of me smiling. In fact this is the only one!!
Things are getting back to "normal" around here (whatever that is?) and my Aage has gone home to Tennessee. Thank you for being such a great help!!! I don't have very much to post put here are a few highlights of the past few weeks:

-Congrats to Auntie Danielle and Uncle Brad on there new baby boy Peyton :)
-Mommy and Daddy have decided to attend the CHARGE Conference in Chicago this July. They originally did not think that they would be able to go but now are very excited!!
-Today was my last day of Stepping Stones. Yep I graduated!!!


Thank you all for your wonderful messages.

Evan Henry Ali

On May 30th 2009 Evan Henry Ali was born at 27 weeks + 3 days gestation. He passed peacefully 6 hours later due to lung and heart complications.

Thank you to everyone for there love and support during these past few trying months.

Mommy is fine and resting (and is finally home thank goodness).

Drumstick Tales

Hello Everybody!!! This week I had many adventures. I went to stay in Toronto with my Daddy and Aage at a hotel down the street from Mommy's hospital. I am a little sick now and sadly.... I lost my hearing aid. Uuugh!!! I know, Mommy is really sad. It is strange how quiet I have become just after 1 week.

Now I did not take this adventure in the big city alone. I had my trusty Drumstick with me. I now take it everywhere. ( I actually have 2 but I like this one) Mommy thinks it is super funny that I take it everywhere. Some kids have Teddys, some have drumsticks.


Here is me playing on the floor with it.

I take it in my stroller for all my walks

Daddy says in this picture I am signing Mommy while holding it. Mommy thinks that is wishful thinking.

I am now back in the comfort of my own home but far far away from my Mommy. Mommy is sooooooo sad. It has taken her a few tries to write this because she keeps crying. She has never been away from me for so long.

Mommy is doing ok. Daddy and her are hoping for the best, but the best means at least 4+ more weeks in the hospital. Maybe Daddy and I can rent small place in Toronto if it gets to be too long. I will keep you posted.